Day 4

Today the nurses put Talia from CPAP (assisted breathing) onto "nose prongs" which is actually a good thing, despite the way it sounds. This was intended to be just for us to cuddle her, but we were so slow in getting organised, she was on them for half the day and then I finally had my first "kangaroo care" cuddle with her on my hairy chest - she didn't seem to mind!

This was an amazing experience and a step closer to that "letting go" (not there yet!) for me. She seemed to be quite twisted but apparently was very comfortable, since she had no breathing issues for an entire hour.

We then moved her to Jan for another hour, which is typically somewhat too long for a cuddle, being off CPAP, but Talia had no problems at all. She ended up being off CPAP for 18 hours, which was very pleasing to the nurses and ourselves. Even the pediatrician on this occasion was very positive.

Every day has setbacks and challenges, mixed up with joys and steps forward. The emotions are draining us and all we can do is keep holding on to the One who loves us beyond our understanding. We know there are incredibly difficult decisions to be made and we have God and some incredible family and friends standing with us every step of the way.